Influencing of family management in families with thalassemic children on health related quality of life and family functioning: SEM approach

Orranuch Chusri, Wannee Deoisres, Marcia L Van Riper

Research output: Contribution to journalArticle

Abstract

Purpose: To predicate the way in which families incorporate the work of managing a child with thalassemia within family life and its outcomes. Methods: A correlational design with a structural equation modeling (SEM) approach was used. A total of 309 parents of children with thalassemia from 4 tertiary care hospitals in Thailand completed our questionnaires. Results: Family life difficulties had a negative influence on the child’s health-related quality of life (HRQOL) (β = −2.23, p < 0.05) and family functioning (β = −0.27, p < 0.05), whereas the child’s daily life (β = 5.06, p < 0.05) and condition management ability (β = −1.86, p < 0.05) had a negative influence on the child’s HRQOL. In the final model, 3 variables including the child’s daily life, condition management ability, and family life difficulty could explain 33 % of variance in the child’s HRQOL (R2 = 0.33). This model showed that only family life difficulty could explain 2 % of variance of family functioning (R2 = 0.02). Conclusions: The study suggests that nurses should design interventions to support families in managing their child’s conditions in order to achieve a good child and family outcomes.

LanguageEnglish (US)
Pages27-38
Number of pages12
JournalWalailak Journal of Science and Technology
Volume16
Issue number1
StatePublished - Jan 1 2019

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Quality of Life
Aptitude
Thalassemia
Child Health
Thailand
Tertiary Healthcare
Tertiary Care Centers
Parents
Nurses

Keywords

  • Children with thalassemia
  • Family functioning
  • Family management
  • Health related quality of life
  • Parental perception

ASJC Scopus subject areas

  • General

Cite this

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title = "Influencing of family management in families with thalassemic children on health related quality of life and family functioning: SEM approach",
abstract = "Purpose: To predicate the way in which families incorporate the work of managing a child with thalassemia within family life and its outcomes. Methods: A correlational design with a structural equation modeling (SEM) approach was used. A total of 309 parents of children with thalassemia from 4 tertiary care hospitals in Thailand completed our questionnaires. Results: Family life difficulties had a negative influence on the child’s health-related quality of life (HRQOL) (β = −2.23, p < 0.05) and family functioning (β = −0.27, p < 0.05), whereas the child’s daily life (β = 5.06, p < 0.05) and condition management ability (β = −1.86, p < 0.05) had a negative influence on the child’s HRQOL. In the final model, 3 variables including the child’s daily life, condition management ability, and family life difficulty could explain 33 {\%} of variance in the child’s HRQOL (R2 = 0.33). This model showed that only family life difficulty could explain 2 {\%} of variance of family functioning (R2 = 0.02). Conclusions: The study suggests that nurses should design interventions to support families in managing their child’s conditions in order to achieve a good child and family outcomes.",
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