Decision Support Lab - Breast Cancer Project

Project: Research project


The Decision Support Lab at The Cecil G. Sheps Center for Health Services Research will continue research on breast cancer treatment decisions during the 2011-2012 fiscal year. This work is part of the study “Measuring the Quality of Decisions in Breast Cancer” and involves survey research with breast cancer patients.

Validation in Survivors
This phase of the study has been completed. During 2011-2012 fiscal year, we will be redoing some of the data analyses, and we will submit manuscripts of our findings for publication.

Validation in Newly Diagnosed Patients
This phase of the study will validate two decision quality instruments in women who have been diagnosed with early stage breast cancer. The instruments measure the degree to which patients are informed and the degree to which their decisions reflect their values. The two decisions are adjuvant therapy for early stage disease and surgery for early stage disease. Approximately 75 patients are currently enrolled in this phase of the study at UNC-CH. Over the 2011-2012 fiscal year, we will complete the 1 year follow up surveys with these participants. Participants will receive either the surgery decision instrument alone or both the surgery and adjuvant therapy instruments by mail approximately 1 year after completion of the baseline survey. This longitudinal assessment will be important to examine how their knowledge and preferences may change over time. Data will be sent to the Center for Survey Research for analysis. The UNC-CH IRB has approved of this study
Effective start/end date7/1/116/30/12


  • Foundation for Informed Medical Decision Making


Breast Neoplasms
Health Services Research
Research Ethics Committees
Postal Service
Surveys and Questionnaires