Binge Eating Disorder in the Swedish National Registries: Project 1

Project: Research project


Overarching Program Initiative
To establish a dedicated research group spanning the University of North Carolina at Chapel Hill (UNC) and the Karolinska Institutet (KI) in Stockholm, Sweden that will be uniquely positioned to answer key questions about risk factors, correlates, course of illness, and outcome of binge eating disorder (BED).
The group will be led by senior researchers at the UNC and KI and include trainees (PhD student, post-doctoral fellow), and database experts (management and analysis). The group will have access to the international resource of Swedish National Register data that will enable them to answer critical questions related to BED in ways that no other research group can. The initiative will also open collaborations with other aspects of the emerging eating disorders center at the Karolinska to be directed by Dr. Bulik including genetic studies and the Stockholm Center for Eating Disorders (SCED) one of Europe’s largest eating disorder clinics holding an unparalleled dataset which includes over 10,000 patients with eating disorder diagnoses.

Program Foci
The group will generate (investigator-initiated), and assist with developing Shire-initiated projects focused on specific aims related to BED. Investigator-initiated projects will optimize the register data to address critical research questions related to BED. As Shire colleagues pose research questions, we will assist with determining the best way to address them with the register or clinic data and collaborate on crafting and refining project aims.

Details regarding Project 1 are set out below. Upon successful completion, the Parties may discuss expanding the research program to include additional projects as initial analyses are completed and as the field of BED expands.

UNC and the Karolinska will conduct all analyses and provide tables and interpretation to Shire. UNC and the Karolinska would expect to publish the data generated from this project and credit Shire as appropriate in all publications and presentations.
Effective start/end date9/1/1412/31/15


  • Industry Sponsor


eating disorder