• 174 Citations
  • 8 h-Index
20072018
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  • 2 Similar Profiles
Cystic Fibrosis Medicine & Life Sciences
Lung Transplantation Medicine & Life Sciences
Pediatrics Medicine & Life Sciences
Caregivers Medicine & Life Sciences
Terminal Care Medicine & Life Sciences
Pulmonary Medicine Medicine & Life Sciences
Young Adult Medicine & Life Sciences
Communication Medicine & Life Sciences

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Projects 2008 2018

Palliative Care
Cystic Fibrosis
Hope
Caregivers
Advance Care Planning
Cystic Fibrosis
Patient Transfer
Quality of Health Care
Transition to Adult Care
Pediatrics

Research Output 2007 2018

  • 174 Citations
  • 8 h-Index
  • 16 Article
  • 4 Review article
1 Citations

Defining palliative care in cystic fibrosis: A Delphi study

Dellon, E. P., Goggin, J., Chen, E., Sabadosa, K., Hempstead, S. E., Faro, A. & Homa, K., May 1 2018, In : Journal of Cystic Fibrosis. 17, 3, p. 416-421 6 p.

Research output: Contribution to journalArticle

Delphi Technique
Palliative Care
Cystic Fibrosis
Quality of Life
Quality Improvement
1 Citations

Difficult conversations: Discussing prognosis with children with cystic fibrosis

Farber, J. G., Prieur, M. G., Roach, C., Shay, R., Walter, M., Borowitz, D. & Dellon, E. P., May 1 2018, In : Pediatric pulmonology. 53, 5, p. 592-598 7 p.

Research output: Contribution to journalArticle

Cystic Fibrosis
Young Adult
Parents
Communication
Learning
1 Citations

End-of-life practice patterns at U.S. adult cystic fibrosis care centers: A national retrospective chart review

Chen, E., Homa, K., Goggin, J., Sabadosa, K. A., Hempstead, S., Marshall, B. C., Faro, A. & Dellon, E. P., Jul 1 2018, In : Journal of Cystic Fibrosis. 17, 4, p. 548-554 7 p.

Research output: Contribution to journalArticle

Cystic Fibrosis
Advance Care Planning
Palliative Care
Hospice Care
Terminal Care

Highlights from the 2017 North American Cystic Fibrosis Conference

Martiniano, S. L., Toprak, D., Ong, T., Zemanick, E. T., Daines, C. L., Muhlebach, M. S., Esther, C. R. & Dellon, E. P., Jan 1 2018, (Accepted/In press) In : Pediatric Pulmonology.

Research output: Contribution to journalArticle

Cystic Fibrosis
Pulmonary Medicine
Quality Improvement
Lung Diseases
Clinical Trials
3 Citations

Highlights from the 2016 North American Cystic Fibrosis Conference

Zemanick, E. T., Daines, C. L., Dellon, E. P., Esther, C. R., Kinghorn, B. A., Ong, T. & Muhlebach, M. S., Aug 1 2017, In : Pediatric Pulmonology. 52, 8, p. 1103-1110 8 p.

Research output: Contribution to journalReview article

Cystic Fibrosis
Clinical Trials
Pulmonary Medicine
Quality Improvement
Lung Diseases